more than 50 years, Duangjay Samaksamam, from
Thailand, has suffered from an extremely rare and
painful affliction that leaves her limbs permanently
swollen.
According to a new series,Body Bizzare,Experts
believe the 59-year-old is the only person in the
world to suffer the rare condition macrodystrophia
lipomastosa from shoulder to fingers on both
arms.Embarrassed by her condition throughout her
childhood, she spent the first 20 years of her life as a
recluse ashamed of the way she looked, meaning she
never went to school.
But she was forced to come out of hiding at the age of
20 to earn a living in order to care for her elderly
parents, and take over running the family grocery
shop.She said..
My hands are so heavy I can barely lift them to comb
or shampoo my hair, it's very difficult. Getting
dressed is also very difficult and painful.
'Some doctors said the only solution was to cut off my
hands if I wished to walk around freely. But I don't
want to do that.'They removed about 700 grams of fat
and blood out of my hands but after a month it just
grew back"
Plastic surgeon Dr Eiju Uchinuma said:
'This case is very rare. Both her arms are enlarged.
Her arms and hands are enormous so they swell
badly but it could be worse.My diagnosis is that she
is the first and only person in the world who has
Macrodystrophia Lipomatosa from shoulders to her
fingers on both arms.
'The cause of the disease is unknown and is therefore
incurable
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